This section looks at key parts of the journey of caring for someone with dementia – the immediate aftermath of diagnosis, the emotional adjustment, and coping with the progression of their condition. It discusses how others have coped with these experiences and how to prepare ahead.
Everyone’s journey with dementia is different. No two people have the same experience, and everyone’s personal circumstances – family life, friends, where they live – are different.
But there are some key milestones that a lot of carers have in common. The days and weeks after the first diagnosis are a turbulent emotional period and it will take time to come to terms with their condition. You may need to visit hospital regularly, and at some point you might consider alternative housing options for the person you care for. Hopefully, the pages in this section will help you make sense of your situation, wherever you are on your journey, and help you prepare for the challenges ahead.
We highly recommend taking a look at our advice for all carers too. We have a section on planning the future and a section on managing someone’s affairs. As the person you care for gradually loses their ability to make decisions, you may end up taking over decision making. There are lots of things you can do to make sure you know the wishes of the person you care for. These sections provide a guide to making this process as smooth as possible.
This page is a “getting started” guide if someone you care for has just been diagnosed with dementia.
This page looks at how caring for someone with dementia affects you emotionally, and who can help.
Progression of dementia
This is a guide to what support the person you care for might need as their condition progresses.
Covers how to prepare for visits to the hospital and what to pack if the person you care for is staying overnight.
This page explains the housing options available and how to cope with moving someone into residential care.
When your caring role ends
Looks at coming to terms with no longer being a carer, bereavement, and moving on.